I got my 3rd infusion of Taxol yesterday, February 16th. The first two went without a reaction so they told me I could stop taking the steroids. This was the first infusion without taking the steroids beforehand.
This appointment was pretty much a cluster. They didn’t have an 8:00 am appointment. I got 1:00 pm instead. I got there and they sent me to what they call Short Stay. That’s where they have people who will be there for 30 minutes or less. The idea was to access my port and do the blood draws there, and then send me on for my treatment. I sat in Short Stay for almost an hour until one of the other nurses came back from lunch. She took care of the port and blood draws and sent me back to the waiting room.
Once in the waiting room, another nurse called me almost immediately to take me to see the doctor. When we get to the exam room she asks me where I was because they’d been calling me for 20 minutes. I was kind of shocked that she didn’t know they’d sent me to Short Stay. I didn’t think much of that until later. I spent another 45 minutes in that room between taking my vitals, waiting for the doctor and going through my treatment history with him.To top off my appointment, he pretty much dismissed me as a middle-aged woman with age-related memory issues.
I finally got to a treatment room where I sat for another 30 minutes waiting for a nurse to come in and get started about 3:00. Another hour and change later, she figured out that the nurse who did my blood draw forgot a vial and they needed to take more, which she did. They finally ordered my chemo at 5:00 pm. I finally got to go home at 7:00 pm. I don’t think I’ve seen a more inefficient and communication-less process. This seems to go on past the shortage of onco-trained nurses.
In the midst of all this, I didn’t see or hear from my oncologist’s’ nurse. She usually stops by during my appointments. I didn’t see a scheduler, either, so I have to call on Monday to schedule my next month’s worth of appointments.
I’m not sure if it was the chemo, the mixup in my pre-chemo meds, my general frustration with how I’ve been treated this past month or a combination of all of the above, but this infusion really bugged my stomach. I spent the entire night fighting reflux. Thankfully today was a better day.