July 19, 2018
I started on a new weekly chemo today. It’s a platinum-based radiosensitizer called Cisplatin. It’s got some tough side effects. I’m hoping that because I’m on a lower dose, the side effects are less as well. I already have chemo brain and peripheral neuropathy, and I would prefer neither got worse. This chemo will require me to stay really hydrated, which may be difficult, but I’m going to do all I can because I don’t want kidney issues out of this, either. With this one, I go back to taking daily steroids and anti-nausea meds. I have to take the Zofran every 6 hours and the other 2 every 12. Today, I drank about a gallon of water in addition to the 2 liters they gave me in the IV. I’ve already lost count of the times I’ve peed today. LOL
July 20, 2018
I went back in for my Herceptin and Perjeta infusions, which I get every 3 weeks. There is something about the processing of the orders that the Medical Oncologist decided would be easier if the Cisplatin orders were done as separate “paper” orders. The nurse today told me that it probably sucks for me, but it was really helpful for them to do it that way. They’re going to see if they can add the Herceptin/Perjeta infusions to the scheduled Cisplatin days to help save me time sitting there multiple days. That’s pretty nice.
First day of Cisplatin went pretty well. I am waking up in the middle of the night to go to the bathroom again. As the nurse said, it ends up being about the time to take the Zofran, so I did that. I was up most of the night for some reason. It’s been an anxious week, and I am trying to work, so two factors right there. They also advise taking the Zofran as soon as I wake up to “set the tone of the day.” Apparently, a lot of people wake up feeling nauseated and dizzy on this chemo. I haven’t had that effect, but I’ve also only had 1 dose, so the next one will be more telling.
I was able to eat and drink today without any issues. I didn’t quite make a gallon of fluids, but it was close. I like to keep my water/drinks mostly in containers that are easy to count, like quart or liter sized bottles. As long as I can get 3-4 of those in during a day, I’m good. I had the first radiation treatment following the cisplatin today, too. I didn’t notice any real significant changes. The nurse there asked if I was scheduled for mid-week fluids. I’m not yet. Hoping I don’t need to. She also said that she’s heard the 4th day after stopping the anti-nausea and steroid medications is rough with cisplatin. One day at a time.
I was able to enjoy a night out with friends tonight, too. We had some tacos and fruit. I got to spend some time with the mutts and the little one. Like my nephew at her age, she likes to get scared when you sneak around the corner and say “Boo!” She’s a smart cookie – knows all her letters and numbers. She’s got a little tablet that she walks around with and plays little educational games and videos. We play Strawberry Shortcake sometimes. I love hanging out with her and the muttses.
July 21, 2018
I woke up thinking I needed to be on a conference call – it was showing up in my phone calendar. I did some of my usual Saturday morning reading before getting up and starting the day. I woke up hungry and craving French Toast. I don’t have bread so I started thinking about whether I could get out and grab something and get back before my call. I decided to wait til the call was done and then see where I was at hunger-wise.I also woke up with a scratchy throat. I think this is more from being overtired and probably snoring a lot of last night because I was overtired. I got up and took my meds, headed down to the computer to discover that there wasn’t a call – I hadn’t cleared the reminder from yesterday. So… I started doing some of the work I said I’d do anyway and decided to use Door Dash to bring me some French Toast. There were a couple of decent enough options, so I tried a place I’ve been meaning to try for a while and ordered breakfast. It was decent enough. It came with eggs, hash browns and 3 kinds of meat. I need the extra protein so it was a good option. When I finished eating, I went to work on some documentation for work. It was nice to be able to do something productive, and to get some hours in because all the various appointments are eating my lunch a bit. I watched some old Star Trek and Big Bang Theory before going to bed. I know. Boring.
July 22, 2018
I spent a lazy day on the couch today, and I needed it. I worked about 6 hours yesterday on some documentation. That was pretty tiring. Around dinner time I decided I should get a few things done, maybe go for a walk and get the mail, stuff like that. About that time, I started feeling like my blood sugar was tanking. I made some food first – I’d found some boneless pork ribs and so I just tossed them on the broiler to get them done fast. They turned out pretty good. After I ate, I took another short nap, and then my digestive system went to war with me. I had an inkling this might happen. The new chemo can cause both constipation and diarrhea. Apparently at the same time. Yay. Thankfully, after I got whatever out of my system, I felt pretty good.
July 23, 2018
I was hungry when I woke up this morning. Kind of a low blood sugar hungry, so I had some melon before I headed off to radiation. When I was finished, I went and got an Egg McMuffin. I felt okay for a while and then felt like I needed to find something to eat again about an hour later. When I get chemo, I’m given a steroid and anti-nausea meds that I need to take for 3 days after the infusion. This being my first infusion of Cisplatin, I don’t feel like I really needed them, but I took them anyway because I’m supposed to and in case I was going to have a problem. Thankfully, I didn’t have any issues other than this feeling that my blood sugar is low. I’m not sure if it’s the Reglan, the Cisplatin or if my sugar actually is low from one of these drugs. Thankfully, it didn’t affect my ability to eat and drink, and I got in somewhere around 5 or 6 quarts of water in today when all was said and done. I also went in and got the blood work for my next infusion tomorrow done at one of the other clinics. We’ll find out, hopefully, whether it’s my sugar or the drugs tomorrow when I get infusion #2.